We are here to support UK patients and families affected by SDS.
Providing forums for families, patients & medical professionals to connect.
Promoting access to health and educational services & resources.
Supporting the development of an adult clinic and transition from paediatric to adult care.
Supporting research into the pathophysiology of SDS and potential treatments, in particular a dedicated UK Patient Registry.
Fundraising to meet charity objectives.
SDS UK is a Registered Charity: 1164269